Designing for Emotional Support in Caregiving Journeys
Overview
42% of partners reported feelings of isolation and anxiety. How might we support SCI partners through digital tools?
OBJECTIVES
Feelinks is envisioned as a supportive digital hub to foster connections, shared experiences, and emotional support among the partners of people with a spinal cord injury (SCI).
mETHODES
Field Study
Explorative Interview
Stakeholder Map
Persona
Empathy Map
Wireframing
Paper Prototyping
MVP
Figma
Jotform
Miro
Meet
IMPACT
Breaking isolation for an estimated 2.5 million+ SCI caregivers worldwide who often experience 3× higher rates of depression than the general population.
Centralizing critical knowledge that reduces the average 7.5 hours weekly that caregivers spend searching for information across 12+ fragmented online sources
Building community resilience through peer-to-peer support, potentially reducing the 40% of SCI partners who report feeling severely isolated
Enhancing caregiving quality by addressing the needs of partners who provide an average of 11.3 hours of daily care, valued at $120,000+ annually per caregiver
Introduction
When a spinal cord injury changes everything, who supports the supporters?
Spinal Cord Injuries (SCI) are life-altering events that extend their impact beyond the affected individuals to their close relatives, especially partners. This traumatic life event brings significant changes for partners, resulting in mental and physical burdens and putting them at risk of burnout. Each question and each challenge underscore the multifaceted nature of the issues.
The problem
As 42% of SCI partners reported feelings of isolation and anxiety, more attention and support are essential to alleviating their challenges.
I found a Facebook group of 2000+ international women with their partners in a wheelchair.
That was the best place to validate the insights from literature using the research canvas method.
Reaching out to them, I managed to plan several interviews to gather insights in a detailed way.
INTERVIEW INSIGHTS
The interviews validated the fact that there is room for improvement of the platform they currently use. (the Facebook group).
The interviews validated the fact that there is room for improvement of the platform they currently use. (the Facebook group).
The suggestions helped me map all the needs and pain points and translate them to design solutions.
The insights helped me map all the needs and pain points and translate them to design solutions.
JOBS TO BE DONE
From 11 user interviews, I've identified two main categories of tasks that need to be accomplished:
1. Establishing Connection
2. Gaining Knowledge
Each of the categories have been again categorized into two subcategories to make specific characteristic for the content.